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portada One in Thousands: - my life as a rarity
Type
Physical Book
Language
Inglés
Pages
206
Format
Paperback
Dimensions
20.3 x 12.7 x 1.2 cm
Weight
0.23 kg.
ISBN13
9788743030768
Categories

One in Thousands: - my life as a rarity

Dorrit Barrett (Author) · Books on Demand · Paperback

One in Thousands: - my life as a rarity - Barrett, Dorrit

Physical Book

£ 32.21

  • Condition: New
Origin: U.S.A. (Import costs included in the price)
It will be shipped from our warehouse between Friday, July 05 and Wednesday, July 17.
You will receive it anywhere in United Kingdom between 1 and 3 business days after shipment.

Synopsis "One in Thousands: - my life as a rarity"

Ehlers-Danlos Syndrome is probably the most overlooked physical handicap in the world. A genetic hiccup changes your body completely, and as you look "normal", nobody understands why you can't BE normal. Not even your doctor, who may have forgotten all she ever heard about the rare syndrome. The author has fought for a "normal" life for 77 years. It didn't become normal, but both interesting and meaningful in spite of her invisible enemies: Her own shame of not being like everybody else, and an environment - including the medical world - that was convinced her problems "were all in her head". Her kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations - there are 13 in all - are far more common. You may have heard of people who suffer from one of them. You may even know one.

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The book is written in English.
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